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Saturday, October 27, 2012

Ow, ow, ow!

For a while there I really thought I had this whole endo thing under control. But this is the second month in a row that, despite the acupuncture, I have been in excruciating pain, buckled over, writhing in agony. I can't help but think that it may be time to try the Lupron. My Dr. said he'd want to try that first to see if a hysterectomy would be successful for stopping the pain, because sometimes it's not. But that if the Lupron works then we can be pretty certain that a hysterectomy would too. Last month I was out of town with some other ladies and the pain came on so intensely and so quickly that I couldn't even move and seriously considered calling dh to drive the four and a half hours to come get me. This morning was pretty much the same. Prescription pain meds and a heating pad later I'm back in bed riding it out. I had thought I could talk about it all with my therapist of several years. Sadly, she has recently been diagnosed with ALS. Terrible.... it's terminal so all that she can hope for is time. I wish that I could be as supportive of her as she has for me for all these years. Obviously, she's no longer seeing patients. That means I'm going to have to find a new therapist, starting from scratch with my history. {{sigh}} But, I'll get through it. In the mean time, I guess I have some serious thinking to do. I don't know what to expect with Lupron. I can't really talk to my family about it, because all they ever do when it comes to me and health issues is insist that I go see their doctors because they went to highschool with them... as if that makes them better than the doctors I see. Very frustrating. If anyone has any thoughts on all this... I'm open to hearing them!

2 comments:

  1. I'm sorry, endo just sucks. I think mine is working on coming back also even though I just did excision in April. I don't have any advice, but I would love to hear more about what you are going to do to treat it. My dr said that if my endo problems come back he wants to treat it with progesterone. I’m hoping it doesn’t come back and that I have just have had a couple of heavy cycles the last couple of months.

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  2. Thank you for your comment. I can tell you that acupuncture has really helped with the pain. A supplement called DIM-plus has also been helpful in managing the symptoms. It is derived from cruciferous vegetables like brocolli and brussel sprouts and is said to help metabolize estrogen. I would recommend trying both. I have tried progesterone and, though I know it is helpful to many, it didn't help me at all. I have also tried BCP, without any success. My GYN has told me that Lupron will tell us whether a hysterectomy will work, but I haven't tried that yet. I am looking into getting another opinion. Even though I love my GYN... he's kind, sympathetic, and actually LISTENS... I figure another opinion from a specialist can't hurt. I recently contacted the Center for Endometriosis Care in Atlanta to review my chart. They will do so free of charge and I am getting a copy to send them. If they have an opinion different from my doctor, I may go actually see a doctor there to see what they have to say.

    I hope that helps. I'll keep my blog up to date with any new info! I hope that your endo isn't coming back with the vengance that mine seems to be. You're right... it sucks!

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